Living with Primary Immunodeficiency is, like living with any chronic illness, a journey of doubt, fear and at times loneliness.

PiNSA is an association that understands all these feelings because it was set up by patients and their families who have walked the same ‘gravel road’. The impact of PID on the individual is immense because it affects relationships both within the family and beyond but properly managed (and medical science has never been better) it can be minimised to the point of allowing nearly the freedom any other person enjoys.

This page has great resources to assist in the process, tried and tested and underpinned by knowledgeable and sympathetic people who are also on this journey. You Are Not Alone!

Downloadable Guides and resources: