Supporting and advocating
for optimal treatment of
Primary Immunodeficiency
Welcome to PiNSA
We are here to help
SUPPORT
Give support to patients and
their families
AWARENESS
Create awareness of the condition in both the medical and wider community through a vibrant and active advocacy programme
INFORMATION
Supply information to patients, their
families and the medical community
FUNDRAISING
Do fundraising to ensure the
sustainability of PiNSA
LOBBYING
Support lobbying of all stakeholders including government, suppliers and
medical aids
TRAINING
Facilitate treatment training by
immunology nurses
Have you been diagnosed with Primary Immunodeficiency?
Join the Community
Anyone diagnosed with primary immunodeficiency in South Africa is encouraged to join PiNSA and enjoy the support not only from each other through PiNSA_Link, but also this website.
Healthcare Professionals including nurses, partner NMO’s and our product partners are also welcome to register and thus access the Member Portal using the e-mail address below.
For any queries or to join PiNSA please e-mail info@pinsa.org.za
Latest News
PiNSA AGM 2023
The PiNSA AGM was held on Saturday 24 June and the Minutes will be published shortly for the members subscribed to PiNSA_Link, our primary communication platform. Our new website was officially launched at the AGM and very well received, especially the Members Portal; to quote Professor Esser of our Medical Advisory Panel “Wonderful website and…
PiNSA Board Meeting Western Cape 2023
The new PiNSA Board recently held an all-day planning workshop. It was a great opportunity to meet face-to-face and also identify our strengths and weaknesses as an organisation and develop a strategy going forward to better serve our members.
Emily Dickinson quote
Borrowed from the Jeffery Modell Foundation and quoted at the Constitution of PiNSA as an association at Red Cross Childrens’ Hospital, Cape Town, 2001. “If I can stop one heart from breaking, I shall not live in vain, If I can ease one life the aching, or cool one pain, Or help one fainting robin…
