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Rare Diseases Conference Cape Town 2016
ByPiNSA
The Rare Diseases Conference | 19 – 22 October | Cape Town, South Africa. The first Rare Diseases Conference to be held on the African continent; RareX 2016 was held in Cape Town, South Africa at the Spier Conference Centre from 19 to 22 October and was proudly hosted by Rare Diseases South Africa (RDSA) and the International…
REPORT: EURORDIS Summer School for Patient Advocates in Clinical Trials and Drug Development
ByPiNSA
29 June 2012 SECTION 1: THE EVENT Introduction A capacity building programme for patient representatives involved at the European level in the development, approval, information and access to orphan drugs, paediatric drugs and advanced therapies. There were 37 attendees at the training from 17 countries, representing 28 rare diseases. Ms Joy Rosario. Chair of PiNSA…
PiNSA Board Meeting Gauteng 2012
ByPiNSA
The PiNSA Board met at the airport in Johannesburg to plan activities for the forthcoming year
PiNSA Board Meeting Western Cape 2023
ByPiNSA
The new PiNSA Board recently held an all-day planning workshop. It was a great opportunity to meet face-to-face and also identify our strengths and weaknesses as an organisation and develop a strategy going forward to better serve our members.