PiNSA Board Meeting Gauteng 2012
The PiNSA Board met at the airport in Johannesburg to plan activities for the forthcoming year
2012
REPORT: EURORDIS Summer School for Patient Advocates in Clinical Trials and Drug Development
29 June 2012 SECTION 1: THE EVENT Introduction A capacity building programme for patient representatives involved at the European level in the development, approval, information and access to orphan drugs, paediatric drugs and advanced therapies. There were 37 attendees at the training from 17 countries, representing 28 rare diseases. Ms Joy Rosario. Chair of PiNSA…