PID Kids and teens
Sara LeBien’s Book
📌 Members Information:
Our Immune System
A Story for Children with Primary Immunodeficiency Diseases
Written By Sara LeBien
A Story for Children with Primary Immunodeficiency Diseases
Written By Sara LeBien
A lot of people have heard about the Boy in the Bubble, the story of David Demaret who suffered from SCID, or severe combined immune deficiency… Monday April 27, 1998 By CATHY GORDON / Houston Chronicle THE WOODLANDS, Texas – Schools have been named after legendary scholars, renowned scientists and shuttle astronauts who ventured into…
IDF Guide for Young Adults
by Joy Rosario Gabrielle Rosario (Autosomal Recessive Hyper IgM) Gabrielle is 38 and works in the mobile health sector (MHealth) in Johannesburg. She was first diagnosed at the age of three. She had experienced recurrent middle ear infection (otitis media) from the age of 15 months and had her first of twenty six operations at 18…
by Heidi Hudson-Bennett I’d like to introduce you to our three children, Merrick, Hannah and Cayla. On the outside they look completely normal but their bodies are fighting a daily battle against infections. The first few years of Merrick’s life were a constant battle and it felt as if we lived in hospital, Hannah…