At present the main treatment of PID is an infusion, either by intravenous (in the vein) or by sub-cutaneous (under the skin), of fractionated blood products, alongside high and constant doses of antibiotics. Fortunately, with proper medical care, many patients live full and independent lives.
In the event of a reaction, or adverse event the treating doctor needs to report this. The reporting form is available on request from info@pinsa.org.za. Click here for advice on reporting from our Medical Advisory Panel (MAP).
There have been children cured with Bone Marrow Transplants and Gene Therapy.
Recent Updates
Report any adverse reactions to IG products using this form
To all our members It is vital that you, or your treating doctor/nurse use this form to notify SAHPRA of any adverse reaction that you might have from using IG products. This information is vital for several reasons including the following: If your treating doctor recommends alternative IG products due…
Prevention of Infections During Primary Immunodeficiency
Published by Oxford University Press on behalf of the Infectious Diseases Society of America. Below is the full Prevention of Infections During Primary Immunodeficiency article for download. Summary of the Article Because infectious diseases are a major source of morbidity and mortality in the majority of patients with primary immunodeficiencies (PIDs), the application…
New Immune Deficiency Foundation Diagnostic and Clinical Care Guidelines for Primary Immunodeficiency Diseases
2015-Diagnostic-and-Clinical-Care-Guidelines-for-PI
Gene Therapy Links
http://www.piduk.org/whatarepids/treatment/genetherapy
http://www.gosh.nhs.uk/parents-and-visitors/coming-to-hospital/what-we-do/gene-therapy-success/