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Primary Immunodeficiency Disease (PID) is a rare condition whereby patients cannot fight off infections or viruses due to a compromised immune system.  There are over 400 types of PID and, compared to international statistical data for incidence of PID, South Africa has a fraction of the number of patients diagnosed. …

July 2014 This PiNSA statement supports international calls to ensure access to the best suited immunoglobulin (IG) replacement therapy, as prescribed by physicians for patients living with a primary immunodeficiency (PID)[1] that requires IG replacement therapy. It is estimated that there are between 20,000- 40,000 South Africans living with PID,…

8 May 2012 This statement is intended to provide a summary of IPOPI’s position with regards to the importance of ensuring access for patients living with a primary immunodeficiency (PID) to the best suited immunoglobulin (IG) replacement therapy, as selected and prescribed by their physician. IPOPI is concerned by recent…

Western Cape Social Meeting: thanks to Dani Guignet and Heidi Hudson- Bennett World PI Week Cape Town Lots of PID Kids PID Moms PID Dads Gordon and Gaby giraffes joined the party!

  The Rare Diseases Conference | 19 – 22 October | Cape Town, South Africa. The first Rare Diseases Conference to be held on the African continent; RareX 2016 was held in Cape Town, South Africa at the Spier Conference Centre from 19 to 22 October and was proudly hosted by Rare Diseases…

Cape Town, South Africa, February 20-21, 2013 SECTION 1: THE EVENT Introduction Organised by the Economist, Healthcare in Africa gathered180+ influential healthcare stakeholders from government, providers, suppliers and patient groups to explore the key issues around healthcare systems in the continent. The 2013 summit focused on identifying healthcare solutions designed…