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	<title>story - PiNSA Members</title>
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	<description>Primary Immunodeficiency Network of South Africa</description>
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		<title>WorlD PI Week story competition</title>
		<link>https://pinsa.org.za/members/world-pi-week-story-competition/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=world-pi-week-story-competition</link>
		
		<dc:creator><![CDATA[PiNSA]]></dc:creator>
		<pubDate>Wed, 08 Mar 2023 11:00:35 +0000</pubDate>
				<category><![CDATA[PID Kids and Teens]]></category>
		<category><![CDATA[children]]></category>
		<category><![CDATA[competition]]></category>
		<category><![CDATA[parents]]></category>
		<category><![CDATA[story]]></category>
		<category><![CDATA[World PI Week]]></category>
		<category><![CDATA[youth]]></category>
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		<title>Our Immune System: A Story for Children with Primary Immunodeficiency Diseases</title>
		<link>https://pinsa.org.za/members/our-immune-system-a-story-for-children-with-primary-immunodeficiency-diseases/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=our-immune-system-a-story-for-children-with-primary-immunodeficiency-diseases</link>
		
		<dc:creator><![CDATA[PiNSA]]></dc:creator>
		<pubDate>Sun, 05 Oct 2014 19:07:59 +0000</pubDate>
				<category><![CDATA[PID Kids and Teens]]></category>
		<category><![CDATA[Sara le Bien]]></category>
		<category><![CDATA[story]]></category>
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					<description><![CDATA[<p>PID Kids and teens Sara LeBien&#8217;s Book Our Immune System A Story for Children with Primary Immunodeficiency Diseases Written By Sara LeBien</p>
<p>The post <a href="https://pinsa.org.za/members/our-immune-system-a-story-for-children-with-primary-immunodeficiency-diseases/">Our Immune System: A Story for Children with Primary Immunodeficiency Diseases</a> first appeared on <a href="https://pinsa.org.za/members">PiNSA Members</a>.</p>]]></description>
		
		
		
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		<title>Gaby&#8217;s Story</title>
		<link>https://pinsa.org.za/members/gabys-story/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=gabys-story</link>
		
		<dc:creator><![CDATA[PiNSA]]></dc:creator>
		<pubDate>Mon, 29 Sep 2014 12:48:05 +0000</pubDate>
				<category><![CDATA[Patients Stories]]></category>
		<category><![CDATA[Gabrielle Rosario-Maille]]></category>
		<category><![CDATA[patient]]></category>
		<category><![CDATA[story]]></category>
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					<description><![CDATA[<p>by Joy Rosario Gabrielle Rosario (Autosomal Recessive Hyper IgM) Gabrielle is 38 and works in the mobile health sector (MHealth) in Johannesburg. She was first diagnosed at the age of three. She had experienced recurrent middle ear infection (otitis media) from the age of 15 months and had her first of twenty six operations at 18...</p>
<p>The post <a href="https://pinsa.org.za/members/gabys-story/">Gaby’s Story</a> first appeared on <a href="https://pinsa.org.za/members">PiNSA Members</a>.</p>]]></description>
		
		
		
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		<title>Joshua&#8217;s Story</title>
		<link>https://pinsa.org.za/members/joshuas-story/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=joshuas-story</link>
		
		<dc:creator><![CDATA[PiNSA]]></dc:creator>
		<pubDate>Mon, 29 Sep 2014 12:45:20 +0000</pubDate>
				<category><![CDATA[Then_and_Now]]></category>
		<category><![CDATA[Joshua van Rensburg]]></category>
		<category><![CDATA[patient]]></category>
		<category><![CDATA[story]]></category>
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					<description><![CDATA[<p>by Esté van Rensburg, Port Elizabeth, Eastern Cape Representative Joshua Benjamin van Rensburg was born on 24 February 1999 and was a relatively healthy baby except for having asthma, sinusitis and regular bronchitis.  At the age of four our ENT doctor removed his tonsils.  Nebulizers were often used on a regular basis. At the age of...</p>
<p>The post <a href="https://pinsa.org.za/members/joshuas-story/">Joshua’s Story</a> first appeared on <a href="https://pinsa.org.za/members">PiNSA Members</a>.</p>]]></description>
		
		
		
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		<title>Heidi&#8217;s Story</title>
		<link>https://pinsa.org.za/members/heidis-story/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=heidis-story</link>
		
		<dc:creator><![CDATA[PiNSA]]></dc:creator>
		<pubDate>Mon, 29 Sep 2014 12:40:55 +0000</pubDate>
				<category><![CDATA[Then_and_Now]]></category>
		<category><![CDATA[Cayla]]></category>
		<category><![CDATA[Hannah]]></category>
		<category><![CDATA[Heidi Hudson Bennett]]></category>
		<category><![CDATA[Merrick]]></category>
		<category><![CDATA[patient]]></category>
		<category><![CDATA[story]]></category>
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					<description><![CDATA[<p>by Heidi Hudson-Bennett &#160; I&#8217;d like to introduce you to our three children, Merrick, Hannah and Cayla.  On the outside they look completely normal but their bodies are fighting a daily battle against infections. The first few years of Merrick&#8217;s life were a constant battle and it felt as if we lived in hospital, Hannah...</p>
<p>The post <a href="https://pinsa.org.za/members/heidis-story/">Heidi’s Story</a> first appeared on <a href="https://pinsa.org.za/members">PiNSA Members</a>.</p>]]></description>
		
		
		
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		<title>The Boy in the Bubble David Vetter</title>
		<link>https://pinsa.org.za/members/the-boy-in-the-bubble/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=the-boy-in-the-bubble</link>
		
		<dc:creator><![CDATA[PiNSA]]></dc:creator>
		<pubDate>Sat, 06 Sep 2014 00:16:38 +0000</pubDate>
				<category><![CDATA[Then_and_Now]]></category>
		<category><![CDATA[boy in the bubble]]></category>
		<category><![CDATA[David Vetter]]></category>
		<category><![CDATA[patient]]></category>
		<category><![CDATA[story]]></category>
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					<description><![CDATA[<p>A lot of people have heard about the Boy in the Bubble, the story of David Demaret who suffered from SCID, or severe combined immune deficiency… Monday April 27, 1998 By CATHY GORDON / Houston Chronicle THE WOODLANDS, Texas &#8211; Schools have been named after legendary scholars, renowned scientists and shuttle astronauts who ventured into...</p>
<p>The post <a href="https://pinsa.org.za/members/the-boy-in-the-bubble/">The Boy in the Bubble David Vetter</a> first appeared on <a href="https://pinsa.org.za/members">PiNSA Members</a>.</p>]]></description>
		
		
		
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