report - PiNSA Members https://pinsa.org.za/members Primary Immunodeficiency Network of South Africa Thu, 25 May 2023 14:02:38 +0000 en-US hourly 1 https://wordpress.org/?v=6.7.2 Report any adverse reactions to IG products https://pinsa.org.za/members/report-any-adverse-reactions-to-ig-products/?utm_source=rss&utm_medium=rss&utm_campaign=report-any-adverse-reactions-to-ig-products Fri, 19 Jul 2019 13:54:41 +0000 https://www.pinsa.org.za/?p=1306 To all our members It is vital that you, or your treating doctor/nurse use this form to notify SAHPRA of any adverse reaction that you might have from using IG products. This information is vital for several reasons including the following: You can report an adverse event even if you are not certain that it...

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]]> REPORT: EURORDIS Summer School for Patient Advocates in Clinical Trials and Drug Development https://pinsa.org.za/members/reporteurordis-summer-school-for-patient-advocates-in-clinical-trials-and-drug-development/?utm_source=rss&utm_medium=rss&utm_campaign=reporteurordis-summer-school-for-patient-advocates-in-clinical-trials-and-drug-development Mon, 29 Sep 2014 19:22:22 +0000 http://pinsa.wildleim.com/?p=645 29 June 2012 SECTION 1: THE EVENT Introduction A capacity building programme for patient representatives involved at the European level in the development, approval, information and access to orphan drugs, paediatric drugs and advanced therapies. There were 37 attendees at the training from 17 countries, representing 28 rare diseases. Ms Joy Rosario. Chair of PiNSA...

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