EURORDIS - PiNSA Members https://pinsa.org.za/members Primary Immunodeficiency Network of South Africa Sat, 11 Mar 2023 12:39:26 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.1 REPORT: EURORDIS Summer School for Patient Advocates in Clinical Trials and Drug Development https://pinsa.org.za/members/reporteurordis-summer-school-for-patient-advocates-in-clinical-trials-and-drug-development/?utm_source=rss&utm_medium=rss&utm_campaign=reporteurordis-summer-school-for-patient-advocates-in-clinical-trials-and-drug-development Mon, 29 Sep 2014 19:22:22 +0000 http://pinsa.wildleim.com/?p=645 29 June 2012 SECTION 1: THE EVENT Introduction A capacity building programme for patient representatives involved at the European level in the development, approval, information and access to orphan drugs, paediatric drugs and advanced therapies. There were 37 attendees at the training from 17 countries, representing 28 rare diseases. Ms Joy Rosario. Chair of PiNSA...

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